Dear Prayer team,
Please see update on Gill Fu Dong Yu , one of the babies who suffered post operative infection after neurosurgery last week..
Joyce
 
Dr. Joyce Hill MBBS, FRACGP
Director
Hope Foster Home
Beijing, China
www.hopefosterhome.com
Ph:86-10-61424156
fax: 86-10-61424196
Mobile:13801351244
 
----- Original Message -----
From: joyce
To: Nguyen, Tien M.D. ; Scott and Kathy Rosenow
Cc: iaap@iaapadoption.com ; alison@theshepherdscrook.org
Sent: Tuesday, June 28, 2005 3:19 PM
Subject: Re: Dong Yu

 
Hi Everyone, ( Tien , I am including you on this so that you are updated on Dong Yu, the baby with the pseudomonas infection)
 
 I attended the meeting of the Palliative care and Ethics committee today on the decisions to be made for Dong Yu. It was the weirdest thing.
 
 We were to decide on whether to withdraw all treatment and keep her on a morphine drip till she died, or keep fighting i.e. find a neurosurgeon to remove the shunt, put in an external drain and treat her properly with the appropriate antibiotics.( this was not done in Bei Da Hospital) bearing in mind that Pseudomonas is a very aggressive bacteria with poor prognosis for the patient
 
The meeting was attend by 8 of us , all foreigners with medical backgrounds. The meeting lasted an hour and we talked about Dong Yu 's  whole history from the time she came to me as a newborn.( she is now 3 months old) up till her situation today.
 
I was asked to speak first as I knew her from the beginning. I think I held myself together pretty well till I told them about Bei Da Hospital not giving her any pain/fever medication and no clean water to mix her formula.I said that at that point I could not bear to see my child suffer and asked for her to be brought back to Beijing United. I lost my composuret a bit. Just a little bit.
 
After the whole discussion  i.e quality of life , long term care etc etc they took a vote. I was the only one with my hand up, voting to keep fighting for her. Every one else voted against it. Then within seconds ( and I am not too sure what actually happened here) the Chairman was on his cell phone to a surgeon he knew asking if he could come ( turns out that he was not registered to operate there) and I was asked to get on to Dr Liu ( the Chinese doctor who went to Shanghai and upset every one with his arrogance... I had an email from him just before I went to the meeting saying that even though he did not agree with Tien s' methods of treatment he said ."" I hope that you will call me to save the unlucky babys when they need the medical service next time, I promise I can do much better than all the doctors you can find "
Hmm!
 
Anyway, Dr Liu agreed to come to BJU to remove the shunt. He wanted Dong Yu to be moved to Tiantan Hospital but I said no I wanted her treated in BJU. BJU promised me that they would continue to treat her in BJU.
 
The process is still being worked out as I write and I will know in the next 24 hours what will happen to Dong Yu.
Although I was the lone voice  voting to keep fighting ( and I don't even know if I made the right choice) I have no idea why everyone sudden changed their minds.
 
After the meeting 2 of the doctors who had not seen Dong Yu before asked if they could see her . I took them into her room and one of the doctors, a woman, left the room sobbing.
 
Joyce
 
----- Original Message -----
From: Scott and Kathy Rosenow
To: 'joyce'
Cc: alison@theshepherdscrook.org ; iaap@iaapadoption.com
Sent: Monday, June 27, 2005 6:04 PM
Subject: RE: Your babies

 
Okay, Joyce.  We will continue to pray for the babies, for your heart, and for clear leading.  But I have to say that none of us thinks it is at all unprofessional for you to cry on the phone---or anywhere else---about your babies. (Alison is here visiting for our annual banquet next week, and we discussed this in our living room when your email came in.) I would think that if you ever get to the point that you stop crying about their pain, and crying out of frustration about the brick walls you hit up against over and over again, that would be the time to evaluate staying or leaving.  I don't see how it would be possible to do this without shedding tears for them.  We can't do it, and we are getting their stories through e-mail and pictures---you are there holding their little bodies, watching them suffer, feeding, cleaning, caring for, and loving them.  How could you not cry.  I think that He cried for hurting babies when He walked the Earth, don't you?  Please feel free to unload to us anytime you feel the need.  I only wish it could be done face to face instead of always via e-mail. 
 
Love to you tonight,
Kathy (and Scott)
************************
Scott and Kathy Rosenow
The Shepherd's Crook Ministries
P.O. Box 773
West Chester, Ohio  45071
513.844.8873
www.theshepherdscrook.org
-----Original Message-----
From: joyce [mailto:joyce@hopefosterhome.com]
Sent: Tuesday, June 28, 2005 11:09 AM
To: Scott and Kathy Rosenow
Cc: alison@theshepherdscrook.org; iaap@iaapadoption.com
Subject: Re: Your babies

 
Dear Kathy and everyone.
Thank you for the emotional support.
This past month has been a very rough time for me and last night my husband said that unless I am able to handle my emotions somehow , I will not be able to carry on with this work. He said it with greatest of love and concern for me  but I don't know how to handle my emotions. It is so unprofessional for me to cry on the phone when talking to people over the last few days to move the 2 babies around trying to get the best care for them but just the thought of them not being given pain medication and clean water to drink in a major Chinese Children's hospital just devastated me and I could not hold it together. I even had to fight to get them out of that hospital. It seems to be such a battle to do everything here. I am hoping that these trials will continue to strengthen me in His eyes though my weaknesses disappoint me greatly.
 
We meet in a few hours with the Beijing United Hospital Palliative Care Committee re Dong Yu and I will let you know the outcome but I think the decision will be to let her go.  
 
Thank you  for offering to raise funds but right now I don't need any as the babies are being treated for free at Beijing United Hospital. If they decide on just palliative care for Dong Yu I think I will bring her home and continue treatment here as long a they will provide me with the drugs I need. This will save their foundation some money which will go to another baby when the need arises.
 
If and when we need Tien to come back, we will look at the funding issue then. Our Father has never let us down.
 
With all this going on I am also organizing for 4 kids in the next few months to go overseas for surgery, one to Australia ( Craniofacial defect) and 3 to Singapore ( cardiac, bowel and genital defects) Sometimes I  feel like a lone traffic cop at a busy intersection, on 24 hour duty.
 
Thanks for letting me "unload" on you guys. It helps.
Much love
Joyce
 
----- Original Message -----
From: Scott and Kathy Rosenow
To: joyce@hopefosterhome.com
Cc: alison@theshepherdscrook.org ; iaap@iaapadoption.com
Sent: Monday, June 27, 2005 2:38 PM
Subject: Your babies

 
Dear Joyce,
 
I am crying as I type this message.  My heart is breaking for you and for these little ones.  I don't know how do what you do day in and day out.  I know from where your strength comes, because we have experienced that supernaturally ourselves on a daily basis,  but your heart must be so very weary and war-torn.  We have no surgery funds left, but if you are going to try to get funds together to have Tien come back and do anything at all, Scott and I  would be honored to write our supporters and try to get more funds for these precious little ones.  We feel so far away, but long to assist you in this fight on their behalf in any way that we can.  It's not clear how that should be, but we want to help.  Please let us know what we can do.  We will drop everything and get a letter out right away if you want us to.  We are anxious to hear the hospital's decision concerning little Dong Yu. 
 
Praying...
 
Kathy (and Scott)
 
************************
Scott and Kathy Rosenow
The Shepherd's Crook Ministries
P.O. Box 773
West Chester, Ohio  45071
513.844.8873
www.theshepherdscrook.org





and this just in today 29.6.05
 
Dear all,
After my rather tensed conversation with Dr. Liu last night,  I went to the hospital this morning expecting to see that he had done nothing. Promises often don't mean much here in China. I was overjoyed ( and that is an understatement)  and Dong Yu's nanny wept. Liu operated till 2 am this morning and removed her VP shunt and she has an external drain. .I have called him up and expressed by deepest gratitude and we are friends again.
The Palliative Care and Ethics committee met again today ( a little bit in awe of the events that occurred in the last 24 hours) and they have agreed to continue to treat both the babies with heavy dose and appropriate antibiotics and hope for the best.They asked me how I managed to change Dr Liu's mind after he had decided not to operate. I said that I really didn't know .I thought that I was pretty mean to him on the phone.
I guess I have a "Friend in a High Place" whom I have to depend on when all the chips are down. The kids are still not out of the woods yet but my hopes for them have risen dramatically. I guess the next few days will tell.
Tien, assuming that all goes well,  and in 2-3 weeks the infections are all clear, will you be able to come back with the medicated shunts? None of the BJU people want to send the babies back to Shanghai and they are trying to get you registered here in Beijing to operate at least for these babies. Deidre Daniel the Charity coordinator is going to try her best to swing it. If not you will be " assisted" by one of their registered surgeons ( Not Liu) and you will still be able to do it here.
Hope your schedule will allow it. I will keep you updated on their
condition. So far they are looking good.
Joyce

----- Original Message -----
From: "Nguyen, Tien M.D." <TienNguyen@mednet.ucla.edu>
To: "'joyce '" <joyce@hopefosterhome.com>
Sent: Tuesday, June 28, 2005 5:01 PM
Subject: RE: Dong Yu


> Strong work Joyce. I'm glad you're there fighting for them. I just called
> the shunt representative today and left a message about us wanting
> antibiotic shunts for Chinese babies.